Feb 28th Rare Disease Day: Zebras and Equity

Rare diseases as a health equity group. Rare doesn’t mean never. Commonalities & differences.Learning from tiny populations. Chat with Doug Lindsay.

Proem

For twenty-five years, physicians diagnosed my periodic episodes of fainting, falling, disorientation as cardiac. Eventually, in my 50s, I learned I had multiple Sclerosis, not cardiac disease — repeated…

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Empowering people traveling together toward best health. Pt with MS, care partner, nurse, informaticist, leader. Focusing on learning what works for people

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Empowering people traveling together toward best health. Pt with MS, care partner, nurse, informaticist, leader. Focusing on learning what works for people

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