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Power of People. Pause and Trust.
Designing clinical trials for and with people with Traumatic Brain Injury. Lynne Becker looking forward over time, not backward. Building a business.
Proem
You know the old story of the researcher looking for their lost keys under the streetlight when they lost them in the dark alley. ‘Why aren’t you bringing the light into the alley?’ ‘Because the light’s already here in the street.’ OK. Not necessarily a fair story. The researcher might not know that they’ve lost their keys.
People with lived experience certainly know that keys are lost, and sometimes they can ask the questions to help find them. They ask questions to use the answers to make decisions with their clinician partners about their health and treatment. I often shake my head in wonder when I listen to scientists and funders who stubbornly lack awareness of the value of patient-caregiver partnership in all phases of research and clinical trials.
Introducing Lynne Becker
Health Hats: Lynne Becker, a clinical trials research expert, knows the value inside out as a research scientist and a mother of a daughter with Traumatic Brain Injury (TBI). I asked Lynne to introduce herself.
Lynne Becker: Hi, I am Lynne Becker, the CEO, and founder of Power of Patients. I come from the…