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The Missing Voice: Bridging Research and Real-World Care

Danny van Leeuwen Health Hats
15 min readFeb 10, 2025

Proem

Learn with people on the journey toward best health. That’s my tagline. Getting to best health involves many health and care decisions, big and small, day-to-day. The learning part includes a collaboration between patients, caregivers, and their clinician partners using evidence and experience to inform health and care decision-making. Unless implemented by this triad of patient, caregiver, and their clinician partners, evidence or research is useless, merely ink on paper or bytes in space. Research is rarely implemented unless it’s disseminated (shared). Sharing means spreading the word — disseminating research findings to deciders. This podcast is a dissemination tool, along with conversations, conferences, scientific journals, social media, sermons, newspapers, and books. Implementation is doing something with the research results, like modifying a habit, changing a workflow, taking a pill, or getting help.

Share and Use: Dissemination and Implementation

Most industry investment in dissemination and implementation (D&I) of research results focuses on providers — clinicians and medical institutions, not patients and caregivers. Why? Patients and caregivers are the deciders, the end users, and implementers of their health and care decisions. I prioritize…

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Danny van Leeuwen Health Hats
Danny van Leeuwen Health Hats

Written by Danny van Leeuwen Health Hats

Empowering people traveling together toward best health. Pt with MS, care partner, nurse, informaticist, leader. Focusing on learning what works for people

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